Adult Life Committee Co-Chair
Membership Committee Co-Chair
I live outside of Pittsburgh, PA with my husband and have three adult children. Our youngest son, Hunter, is Deaf-Blind and clinically diagnosed with Usher Syndrome type II. I also work as one of the two family engagement coordinators with the Pennsylvania Deaf-Blind Project, and have had the opportunity to work with National Center on Deaf-Blindness (NCDB) and Perkins in my role as a parent leader.
I live in Texas with my husband, Gary. We had two sons. Christian was a preemie who, as a result of many complications, was diagnosed with Deaf-Blindness. He was known as "The Great Motivator" to all who knew him. Christian died suddenly in 2005 at the age of 25. We have continued our involvement and advocacy for all children and adults who are Deaf-Blind in Texas and the US. I was on the Board of DBMAT - The Deaf-Blind Multihandicapped Association of Texas - for 14 years, the last 4 years as President. I am honored to continue my journey with the NFADB.
I live in Cedar Park, TX with my husband and our youngest of two adult children. She is Deaf-Blind and in a wheelchair due to Ataxia. I have the privilege of working as my daughter's intervener in the community as well as her pet sitting business. I also serve as a founding member of a local board. I am a nationally credentialed intervener.
I am native of Mexico, and live in California, where I got married and had two children. My youngest child was born with Deaf-Blindness and was the reason I entered this field. In 2000, I joined California DeafBlind Services as the Family Engagement Specialist. This position which gives me the opportunity to work directly with families, and also ensures that linguistic and cultural sensitivity is offered to our Spanish speaking community. I am involved in several parent groups through southern California including the Birth to Five Vision Network Advisory Group for Dicapta Accessible Communication Developers.
I reside in the tiny metropolis of Adairsville, Georgia with my three children and two felines. My professional journey has afforded me the opportunity to work as an American Sign Language Interpreter, a high school vocational instructor at a residential school for the Deaf , a Vocational Rehabilitation Counselor for the Deaf, and a coordinator for DeafBlind services, and I still do not know what I want to be when I grow up! You may find me on the lake with Georgia Blind Sports kayaking, taking the secretary notes at a Georgia Association of the DeafBlind meeting, or participating at a Northwest Georgia Council for the Blind lunch and learn!
I live in Columbus Ohio with my wife Barbara, we have one adult child Tiara who's the mother of my grandson Max. I became involved with the deaf/blind movement when my grandson was born deaf/blind due to premature birth with a chromosome disorder Monosomy 13Q. My advocacy efforts have led to my involvement with Nationwide Children's Hospital, Columbus City Schools, Governor of the State of Ohio and Ohio Center for Deaf/Blind Education in behalf of families with students with special needs.
I work as a consultant in Government Affairs, Community Relations and Minority Business Development.
It’s my honor to join the NFADB board, and work for the DeafBlind community. I have an MBA in finance and marketing, and have worked in the field of business development, client management and recruitment. I have been associated with nonprofit organizations since 2008 and have served as the co-leader for the Tar-Heel chapter of UMDF. I bring in my experience in the field of children and parent advocacy, fundraising, social media networking, family engagement events, and community outreach programs. I live in Texas with my husband and our two amazing and kind kids, who are diagnosed with Deaf-Blindness. I draw my passion and strength from my children, and I am determined to be a change agent to drive awareness to the unique challenges of DeafBlind community, and improve opportunities for them.
NFADB Special Advisors
NCDB Liaison & Special Advisor
I am from Kansas where I live with my husband and 3 children. I started my career as a classroom teacher and then moved to providing technical assistance to teams serving children with Deaf-Blindness. Presently I am working as a Project Specialist for the National Center on Deaf-Blindness for early Identification/Referral and Family Engagement.
Special Advisor & NCDB Liaison
I started my professional life as a registered nurse working in pediatrics and neonatal intensive care. I later changed careers and became a librarian. I was introduced to Deaf-Blindness when I started working for DB-LINK, a national information center. DB-LINK ultimately became part of the National Center on Deaf-Blindness, where I still work almost 20 years later.
I have been a special advisor to NFADB since its inception and have worked with the DeafBlind Community since 1977.
Special Advisor - Policy and Outreach
I am from Massachusetts. I worked as a professional in the field of Deaf-Blindness for more than 35 years. I bring my experience as the former Perkins International Regional Coordinator for services in Latin America and the Caribbean and, more recently as a regional representative for the Helen Keller National Center to my board role.