Each state has a federally-funded State Deaf-Blind project to help families and educators to provide services for children (0-21) who are deaf-blind. The National Center on Deaf-Blindness works with all of these state projects and is a good place to start to learn about resource and to find your state project.
Many states have a group for families with an individual who is deaf-blind. These groups typically provide information and support to families within that state. Several of these family groups are also NFADB Affiliates.
Check with your state deaf-blind project to find out if your state has a parent group.