FAMILY SPOTLIGHT:

MEET LUIS JULIO, THE GREAT LUILLI

Español: 

Luis, o el gran Luilli como le solemos decir, tiene 20 años y vive en PR con su mama y demás familiares. Desde que nació demostró ser un gran guerrero, nació con múltiples enfermedades crónicas de salud, entre ellas la perdida auditiva y  la Retinitis Pigmentosa. Aun con sus problemas de salud, siempre a demostrado tener un inmenso amor por la vida, un deseo grande por aprender, y de ser parte de su comunidad. Luilli comienza en agosto su ultimo año en la escuela superior, trabaja de forma parcial en una Farmacia de la comunidad cerca de donde vive,  y también es parte del equipo de la Oficina Dental de su abuelo, en donde ayuda con los trabajos diarios. Esta desarrollándose en la cocina y practica deportes en la escuela a la que asiste. Donde quiera que va  demuestra  a todos sus compañeros sus ganas de ser y servir, y a su familia que no hay limites para llegar a donde soñamos. Tenemos un lema como familia…  “Somos guerreros”,  y este lema Luis lo lleva bien en alto.

Formamos parte de la NFADB, hace unos 8 años, y demás esta decir, que de todos sus miembros hemos aprendido a ser quienes somos hoy en día, pues nos sirven de inspiración para abogar y luchar por los derechos de nuestros hijos. Bendecidos y agradecidos por ser parte de esta asociación y por tener a Luis en nuestras vidas.

 English: 

Luis, or “the Great Luilli” as we like to call him, is 20 years old and lives in Puerto Rico with his mother and other relatives. Since he was born he has proven to be a great warrior. He was born with multiple chronic diseases including hearing loss and Retinitis Pigmentosa. Even with his health problems, Luilli always demonstrated a great love for life, a desire to learn, and to be part of his community. In August, Luilli will start his last year in high school. He currently works in a community pharmacy, and he is also part of the Dental Office team of his grandfather, where he helps with daily work. Luis has become quite accomplished in sports, cooking and working in the kitchen at the school he  attends. Wherever he goes he shows his companions and his family that there are no limits. We have a motto as a family…  “We are warriors,” and this motto, Luis proudly carries high.

We have been part of the NFADB for 8 years now, and we are proud to say that all members have taught us to be who we are today, because they serve as an inspiration to advocate and fight for the rights of our children. Blessed and grateful to be part of this partnership and to have Luis “the Great Luilli” in our lives.   


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